by Johanna G. Burke | Jul 31, 2025 | Blog
If you’ve never lived it, you probably have a picture in your head of what autism looks like. Perhaps a child who struggles to make friends, or someone who needs a little extra support, but ultimately grows up to live independently. That’s not my world. For families...
by Johanna G. Burke | Jul 24, 2025 | Blog
When you have a child with profound autism, you learn quickly that “systems” don’t always work the way they should. I’m not just speaking as a parent—I’m a special needs attorney who lives this reality every day. Families like mine want to believe that group homes,...
by Johanna G. Burke | Jul 15, 2025 | Blog
As I mentioned in my last post, for the first time, a high-level government official has spoken openly about profound autism. During a recent press conference, Robert F. Kennedy Jr. addressed what so many families have quietly endured for years—the reality that some...
by Johanna G. Burke | May 12, 2025 | Blog
During a press conference on April 16th, Robert F. Kennedy Jr. became the first high-level government official to publicly address profound autism. His words carried deep meaning for me, for my son Aidan, and for families across the country who live with the reality...
by Johanna G. Burke | Mar 25, 2025 | Blog
New Jersey’s Community Care Program (CCP) replaced the Community Care Waiver (CCW) in 2017. While both initiatives were put in place by the Division of Developmental Disabilities (DDD) with similar objectives in mind, there are several key differences. Key Differences...
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